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For Patients
Mantle Cell Lymphoma (MCL) is a relatively rare disease consituting only about 6% of all non-Hodgkin lymphoma cases in the United States (i.e., only about 3,000 cases per year in the United States).
The Lymphoma Research Foundation (LRF) together with the Mantle Cell Lymphoma Consortium (MCLC) strive to provide valuable information and resources to MCL patients and their loved ones.
The website gives patients access to:
MCLC Clinical Trials Database
One of the goals of the Mantle Cell Lymphoma Consortium (MCLC) is to foster and promote mantle cell lymphoma (MCL) clinical trials. In order to do so, the MCLC has developed a searchable database which contains MCL clinical trials that are currently recruiting or soon to recruit MCL patients. Some of the trials are funded by the Lymphoma Research Foundation (LRF), while others are funded by the National Cancer Institute, the National Institutes of Health, or other funding agencies.
The MCLC clinical trials database is not a comprehensive list. However, the goal is to have as current, complete and accurate a list as possible. As more information is gathered, new trials will be added to the list. To explore the current list of clinical trials, please click here.
To learn more about each trial, please contact the trial organizers directly using the contact information listed for that trial.
LRF Clinical Trials Information Service
The Lymphoma Research Foundation (LRF) also provides a Clinical Trials Information Service to increase awareness about investigational treatments for lymphoma that are being evaluated at cancer treatment centers nationwide. LRF does not provide medical advice or endorse specific treatments, however, upon request, the Helpline staff will provide a search for potential lymphoma treatment trials based upon medical information that you provide. You are strongly encouraged to discuss the summaries that are mailed by LRF with your physician. Your cancer specialist will be familiar with your medical history and can best evaluate all of the study criteria to determine if the clinical trial is appropriate for you.
Hundreds of lymphoma clinical trials are being conducted at hospitals, cancer centers and doctors' offices. They are often sponsored by the government, pharmaceutical companies, universities and physician groups. Each clinical trial phase must be approved by the Food and Drug Administration, as well as the Institutional Review Board of the participating hospital or institution. Your decision to participate in a cancer trial is an individual decision that should be made after careful consideration of all of the potential risks and benefits. You may choose to discontinue participation in a clinical trial at any time. For more general information, please read LRF's Understanding Clinical Trials fact sheet under For Patients.
LRF makes reasonable efforts to search publicly posted trials, but cannot guarantee that the trials provided are entirely comprehensive or that you will in fact meet all eligibility criteria. Clinical trials information is updated frequently. LRF cannot be held responsible for any consequences or damages arising from the use of this information. This service is governed by the term and conditions of the LRF website.
Information that is requested in order to perform the clinical trials search is:
1. Age
2. Diagnosis (lymphoma subtype)
3. Types of previous treatment (if any), the dates and the response
4. Other medical diagnosis (i.e. cancer, HIV, pregnancy)
5. Geographic area willing to travel to for treatment
If you have questions, or would like assistance, call the Lymphoma Research Foundation at 800-500-9976 or e-mail Helpline@lymphoma.org .
In addition, you may wish to contact the National Cancer Institute Cancer Information Service at 800-4-CANCER. Or you can visit one of the National Institutes of Health sponsored clinical trials websites:
- www.clinicaltrials.gov Sponsored by the National Library of Medicine and the National Institutes of Health with links to published medical literature.
- www.cancer.gov/clinicaltrials/finding Sponsored by the National Cancer Institute. This website includes two versions of clinical trials summaries. One is for patients and another is for healthcare professionals.
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